Resources

Cystinois Worlwide

Country Foundation Website
USA Cystinosis Research Network http://www.cystinosis.org/
USA Cystinosis Foundation USA http://www.cystinosisfoundation.org/
USA Cystinosis Research Foundation http://www.natalieswish.com/
UK Cystinosis Foundation UK http://www.cystinosis.org.uk/
Germany Cystinose-Selbsthilfe (Cystinosis Self Help, Germany) http://www.cystinose-selbsthilfe.de/
Italy Italian Cystinosis Association http://www.cistinosi.it/
Ireland Cystinosis Ireland http://cystinosis.ie
Netherlands Cystinosis Netherlands http://www.cystinose.nl/
South Africa Cystinosis Netherlands http://www.charitysa.co.za/cystinosis-support-group-south-africa.html
France Orphan Europe http://www.cystinosislife.com
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